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Camp Summersault - 2002

It was Trent's first year at Camp Summersault, Trevor's family has been attending since 1995. You can't imagine my surprise on that first morning when Diana Craighead grabbed my arm and hugged me when she heard that Trent had a brain stem glioma. Trevor was diagnosed at 2 1/2 and was now 12!!!

Trent was diagnosed incredibly during "Brain Tumor Awareness Week" on May 9th. He will be 5 on September 14th and endured radiation for 6 1/2 weeks at Miller Children's Hospital from May 20th through July 9th. And now he was going to camp less than a month later!!! Diana and I stood out in the parking lot and talked for two hours that first day!!!! She said in all the years they had been attending Camp Summersault, we were the first family she had met with roughly the same diagnosis.

Trevor's tumor was atypical (outside the brain stem), Trent's tumor is typical (within the brain stem) but we still felt like we had so many things in common. She was told by her brain surgeon to take Trevor home and "love him" after surgery but they have been incredibly blessed because Trevor's yearly MRI's have shown only "traces" and he has done fabulously well!!!! Trent had his MRI today, August 13th, and his tumor has shrunk from approximately 5 cm. to 1 X 1.5 cm.!!!! We feel incredibly blessed---it has been a long three months!!!!

Camp Summersault was an incredible experience for both our boys. Big Brother Chandler loved meeting new friends and all the activities. Trent had fun with the counselors and the freedom of feeling great just playing every day!!!! The counselors and ladies in charge were extraordinary and put me at ease right away that they had a great week planned ahead. Every day the boys came home full of stories of what happened that day and a neat craft that they had made. They had fun helping to cook lunch and loved when the Firemen came with the truck the evening of the campfire.

Me, as Mom, loved the week too!!!! The other Mothers were all welcoming to a new face and even invited me to their annual lunch. It was interesting to talk with them about their experiences as no one really can understand what we have been through unless they have been through it themselves. The best part of the week was seeing all the happy faces of the children and knowing they had a great time also!!!! We hope to be invited to attend next summer--it was a great experience!!

Cheri Olson

 


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